Feeding tube awareness week & Noah’s Ark Charity

Eating is something that can be easily taken for granted in a world of such indulgence and choice. Everywhere you go there is a coffee shop, a fast food restaurant and people eating on the go. Have you ever stopped and thought about what it must be like to not be able to eat, not…

The battle zone that is…toddler groups

24 hours a day my mind is consumed with medical thoughts and things to remember, prepare and monitor. To attend a toddler group it is necessary to plan and prepare our day so that my little man needs minimal medical intervention for that 1 hour of the day. As a result he has the opportunity…

How to make an autumnal wreath 🍁🍂🦔

Quoted as being the best time of year for most people, what I love the most is the changing of colours in the trees, the warm crisp autumn mornings and the excitement of the festive period to come! Autumnal leaves are so beautiful, and what better way to make use of them than a budget…

Stoma bag change 101

Using this platform to raise awareness and share how I care for my little warrior, I thought it best to share how I prepare for a bag change. Since bringing him home after his first stoma was formed, I wanted to be prepared for the worst, and plan for the good, the bad and the…

Oh I do like to be beside the seaside…Penarth Pier to be exact!

Last Sunday myself, the hubster and Jakey went to Penarth Pier. We had never been before and to be honest didn’t have very high expectations. We hadn’t heard much of a buzz about the place despite us having had the best summer of weather we can remember, but we wanted to have a low cost,…

Birthday parties and the hidden illness

Children’s birthday parties are something I came to dread when Jake started getting invitations. After going to some lovely toddlers groups and making firm mummy friends who knew and understood Jakes condition, they accepted both Jake and I with open arms. This may seem quite the silliest of notions, but with the stares and obvious…

Let me introduce ourselves..

We are a blended family of four living in South Wales, UK. Myself, a stay at home mum/carer for my little boy, a wife and a step mum. Both my son and I share a rare genetic disorder called Hirschsprungs Disease. Every 1 in 10,000 babies are born with the disease every year in the…

My little soldier

I have been thinking long and hard about starting this blog for around two years now, and after gaining the confidence from creating an Instagram account and the support from our lovely followers, I felt it was time to take the plunge. On February 12th 2016 at 10:40am my now husband and I welcomed our…