We are a blended family of four living in South Wales, UK. Myself, a stay at home mum/carer for my little boy, a wife and a step mum. Both my son and I share a rare genetic disorder called Hirschsprungs Disease. Every 1 in 10,000 babies are born with the disease every year in the UK. We are lucky enough to live near a hospital which has an excellent reputation for caring for children with the disease, giving them the best fighting chance of a good quality of life. This blog was created with the intention of spreading awareness and sharing our journey, with an insight into life as a stay at home mum and nurturing a toddler with complex medical needs. I would encourage anyone with the same condition, or those with an interest in the content of our blog to get in contact. You are not alone. We are hear to spread joy and share our knowledge and experience as best we know how.
Rachel and Jake x