Birthday parties and the hidden illness

Children’s birthday parties are something I came to dread when Jake started getting invitations. After going to some lovely toddlers groups and making firm mummy friends who knew and understood Jakes condition, they accepted both Jake and I with open arms. This may seem quite the silliest of notions, but with the stares and obvious…

Let me introduce ourselves..

We are a blended family of four living in South Wales, UK. Myself, a stay at home mum/carer for my little boy, a wife and a step mum. Both my son and I share a rare genetic disorder called Hirschsprungs Disease. Every 1 in 10,000 babies are born with the disease every year in the…